Lucy's procedures went well yesterday. The bone marrow biopsy went smoothly and her body handled the chemo fine. She did however struggle with behavior. This cancer process and all the meds have her acting in ways we have never seen before that are rather extreme. A lot of anger and defiance. It is hard for us as parents to figure out how to parent her through this because it is difficult to discern what is chemical or fear driven, and what is actually misbehavior that she has control over. Please be praying for us to have wisdom and courage to handle everything well, especially for JD as he will be on the front lines in the hospital this week. And please be praying for our dear Lucy to find a way to be calm through such difficult circumstances. Her difficult behavior is making this process harder on her most of all.
Today, thankfully, has been a great day. JD was able to replace the alternator in the van that just went out. My niece Lara had a small birthday party and Lucy was very happy to help with that. She was in a great mood all day. A perfect distraction from worries about what's to come.
The hospital still hasn't told me when Lucy is supposed to be there tomorrow, despite her having chemo scheduled. Once she does go, her and JD will be in at least 6 days. This hospital is a lot more strict about things so if I am able to visit at all, I will have to switch out with JD instead of joining him for the day. Also, they do not provide food for the parent at this hospital so that will be more complicated. We will know more about all the details once JD and Lucy are admitted and can get the lay of the land.
Thank you so much for all your prayers. As always, we so appreciate the support. These next few weeks could potentially be some of the hardest of the treatment based on the chemo she is receiving. And so far my interactions with the staff at this new hospital have been rather frustrating. Hopefully the inpatient nurses are more helpful.
Prayer needs:
- For Lucy to be calm and brave
- For JD (and me) to have wisdom and strength in knowing how to parent Lucy through this
- For the hospital staff to be kind and helpful
- For Lucy's body to handle all the chemo well
- For me to know how to spend my time best during this next week
A fun note:
Lucy is always happiest when she is serving or giving to others. Yesterday, after a difficult day at the hospital, the first thing she wanted to do was buy donuts for all her cousins. And she insisted we keep it a surprise. I so love her generous spirit.
Praying for you! ♥️